SAPI is running in the Summer Scamper 2016. We would greatly appreciate if you could sponsor our team with a 100% deductible gift today. Jordan and Alex Stettner were chosen as patient heros for the race.
local events
SAPI Lego Day
SAPI sponsored a Lego day! Kids had fun playing with Legos and playing with each other.
Q&A with Stanford Immunologist Manish Butte MD
| Free Event
Saturday January 23rd 11:00am-1:00pm – Please RSVP |
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Q&A with Stanford Immunologist Manish Butte MD Get all your PI questions answered by the Stanford Immunology team · Address Insurance Issues · Answer questions on treatment options · Latest research topics in PI · Network with other PI patients and families
Lucile Packard Auditorium 725 Welch Rd Palo Alto, CA 94304
RSVP To: SAPIadvocate@gmail.com Food Provided |
April 22nd Celebration WPIW World Primary Immunodeficiency Week
Attention: Anyone interested in PI
SAPI cordially invites you and your family to attend
Come Celebrate WPIW
WPIW – World Primary Immunodeficiency Week
Primary immunodeficiency diseases are a group of more than 200 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. While not contagious, these diseases are caused by hereditary or genetic defects and can affect anyone, regardless of age or gender. Many people with primary immunodeficiency can live healthy, productive lives with early diagnosis and appropriate therapies.
There will be a ceremonial Balloon Release
Date: Wednesday, April 22nd, 2015
Time: 12:00 noon Balloon Release
11:00 am – 1:00 pm Lunch Provided
Place: Li Ka Shing Outdoor Quad Area
291 Campus Dr, Palo Alto, CA 94304
LKSC Quad Area (408) 656-1773
Please RSVP By E-mail: SAPIadvocate@gmail.com
SAPI’s Goal for this event and overall mission: SAPI is a local patient organization serving the needs of Northern California patients living with Primary Immunodeficiency. Our mission has 3 areas of focus. First is to raise awareness about the essential unsuspecting need to test, diagnose & treat PI through local events that create a conversation about PI and strengthen the relationships of our local PI community. Second is to provide PI networking opportunities for the emotional support of patients. Third is to create funding for local PI research.
Dr. Butte and Dr. Elena Hsieh speak at IDF Family Conference Day
SAPI participates in the Packard Summer Scamper
SAPI participates in the Packard Summer Scamper. We hosted a booth, answering questions about immune deficiencies. Lynn ran the 5k race, and Dr. Butte ran the 10k race.
SAPI Sponsors Ask an Immunologist Day
Dr. Butte spoke at the second SAPI-sponsored event, an Ask and Immunologist Day held at Lucile Packard Children’s Hospital Stanford Auditorium.
He spoke about adult immune deficiencies (e.g,. CVID). His slides are here.
SAPI Bowling Event
SAPI organized its first event, attended by many children and adults with PI. We rented a few lanes in at Bel-Mateo Bowl, just off El Camino Real in San Mateo, CA.
Fundraising
We want to run some local fundraising events (such as a charity auction, golf tournament, beer or wine tasting) to raise funds for primary immunodeficiency research and treatment. Please contact us if you would like to help.
Kids’ day
We are interested in setting up a “Kids’ day” event in the Bay Area for children with PI. If you’re interested in helping set this event up, please contact us.